Current campaigns – act now
Our latest campaigns events and updates
The PACE Trial: The Making of a Medical Scandal
Special, freely available issue of the JHP on the PACE trial. PACE was a controversial trial of therapies for patients with myalgic encephalomyelitis (ME)/chronic fatigue syndrome (CFS). The current review by NICE of these treatments presents an opportunity to bring clinical practice properly in line with scientific evidence.
DPAC’s Independent Living Action in Parliament
Activists from Disabled People Against Cuts (DPAC) protested cuts to social care in Parliament on Wednesday July 19th. Labour leader Jeremy Corbyn and Shadow Chancellor John McDonnell voiced support for the protest, with McDonnell calling for a better funded social care system designed by disabled people themselves.
Petition to change NICE guidelines on Chronic fatigue syndrome and ME
The ME Association has initiated this petition because they believe, ‘that the current NICE guideline on diagnosis and management of chronic fatigue syndrome and myalgic encephalomyelitis (or encephalopathy) is not fit for purpose and that we are not being afforded a fair opportunity to help produce a better version’.
Call on government to take urgent action on the question of independent living and social care funding for Disabled people
Prime Minister Theresa May has promised a consultation on funding for social care later this year. Take action to call on government to ensure that the consultation will address the need to uphold the right to independent living and the needs of Disabled adults as well as the elderly. Lobby parliament and write to your MP!
Dare not speak thy name – why do we struggle with discussing impairment?
Those of us in the disability sector who adopt a social model of disability approach to disability often struggle with discussing impairment – partly because some feel that it is betraying the social model to do so, but it is also a reaction to the dominance of the impairment narrative in society particularly by charities and the media. Guest post by Zara Todd.
Give feedback to CQC on care at home and other services
If you have experienced poor care, or know that poor care is being provided somewhere you can report it to the CQC, anonymously if you wish. You can also tell them when you feel you have received good care. The information will help improve the overall quality of care in England, and help prevent poor care and abuse happening to others in the future.
